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Health Related Quality of Life of Children with Thalassemia Major in Two Selected Hospitals in Sri Lanka

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dc.contributor.author Silva, W.A.S.V
dc.contributor.author Peiris, H.H
dc.date.accessioned 2021-06-18T07:35:49Z
dc.date.available 2021-06-18T07:35:49Z
dc.date.issued 2020
dc.identifier.citation Silva, W.A.S.V, Peiris, H.H.(2020)."Health Related Quality of Life of Children with Thalassemia Major in Two Selected Hospitals in Sri Lanka", Journal of Health Sciences and Innovative Research 2020;1(1):38-47 en_US
dc.identifier.uri http://dr.lib.sjp.ac.lk/handle/123456789/9403
dc.description.abstract Introduction: Thalassemia is an inherited hemoglobin disorder. There are two types; thalassemia major and minor. Thalassemia major directly affects children’s physical, emotional, social and school functions. Health Related Quality of Life (HRQoL) is an important indicator to assess the health of human. Methods: A cross sectional study was conducted using 60 children (age 2-12 years) with thalassemia major who attended clinics in two selected hospitals in Sri Lanka from July to September 2018. Demographic data and risk factors were collected using a self-administered questionnaire. HRQoL data were collected using the Pediatric Quality of Life Inventory Version 4.0 Generic Core Scale. Data were analyzed using SPSS. Results: Mean values of the total functioning scores of physical, emotional, social and school were 89.42 (±9.20), 87.83 (±10.43), 95.00 (±7.53) and 78.75 (±14.13) respectively. Age of the children was significantly associated with emotional functioning (p=0.046), school functioning (p=0.023), psychosocial health (p=0.021) and the total summary score (p=0.006). Total number of blood transfusions per year of the patient was significantly associated with physical functioning (p=0.002), psychosocial health (p=0.045) and total summary score (p=0.034). Conclusions: Age and the total number of blood transfusions per year significantly affect the HRQoL of children with thalassemia major. Gender, type of iron chelation and age at first blood transfusion did not affect HRQoL of the children. en_US
dc.language.iso en en_US
dc.publisher Faculty of Allied Health Sciences, University of Sri Jayewardenepura en_US
dc.subject HRQoL, Thalassemia major, Haemoglobin disorder en_US
dc.title Health Related Quality of Life of Children with Thalassemia Major in Two Selected Hospitals in Sri Lanka en_US
dc.type Article en_US


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